Education

The CCRD hosts monthly genomic rounds open to researchers and clincians. Please email ccrd@mednet.ucla.edu to join our provider mailing list. 

We have hosted two events for families celebrating rare disease day and hope to plan more patient facing events. You may join our patient email list from our registry link. You may enter as little or as much detail about yourself as you would like. 

Inaugural Rare Disease Day Full Recording 

Second Annual Rare Disease Day Recording